Oh such a sunny day, the date that she was due,
We welcomed the arrival of ‘Gorgeous Grace’ – daughter no. 2,
Although we didn’t know that day, our lives changed in every way,
We had no idea – our ‘Gorgeous Grace’ was here!
I’d had no major issues at all through the pregnancy,
The labour and the delivery, they were relatively easy,
With an APGAR score of ten, You fed and pooed so then…
Home we did go, we already loved you so.
The first 6 months it’s fair to say were a little tough,
Poor weight gain, ear infections – for GG it was rough,
We instinctively felt nervous, Health professionals reassured us,
You were so happy – why was Mommy so flappy?
It all changed overnight, when you didn’t learn to sit,
The first of many milestones that you would not hit,
The daily physio started, ‘Gorgeous Grace’, you just got on with it,
It wasn’t fun but your smile stayed on.
At just 9 months you joined the merry-go-round of the NHS,
The appointments, the referrals and oh my, so many tests,
Neurologist, genetics and so many other specialists and therapists,
But your smile kept us going, you are just so amazing….
We’ve read, researched, networked – to find out what we can,
The fight for all you need is hard but we just keep on,
Some say we do too much, we never feel we do enough,
But we’re on the case – our ‘Gorgeous Grace’!
At two and a half years old, the dreaded seizures started,
Terrified, petrified – it doesn’t scratch the surface,
The day of the EEG, it showed what we needed to see,
Epilepsy x 3 – our poor baby….
The list of issues, just goes on and on,
Now called ‘learning disability’ it doesn’t cover a tonne,
Sensory issues to poor muscle tone, a squint, hearing loss and misaligned bones,
And the challenges developmentally – it’s so much for you to deal with,
You were nearly 3 years old when you started to walk,
And now that you’re older, you are so desperately trying to talk,
Every day you try so much, so happy when we make a fuss,
You have come so far – you really are our star
The fight for everything you need – it just never ends,
The forms for DLA, insane they do us send,
A blue badge rejection, but the school place agreed for reception,
We just won’t quit because GG you deserve it.
The Footsteps physio programme has been great of course,
But your favourite type of physio is definitely on a horse,
Recently we have started Snowdrop, the audio CD makes my head go pop!
But GG you always try your best and make such good progress.
You are such a Daddy’s girl, so excited every time you hear his car,
Your big sister you adore – you always call her ‘Doo Dah’,
Then your brother you call ‘baby’, all part of our precious family,
We all adore you – our gorgeous Gracie- moo!
Our darling girl, you never cease to surprise us every day,
Your love of cheese and blankies – you like things your own way,
You love to be tickled, infectious is your giggle,
And you are so flappy when you are happy!
We have absolutely no idea what the future will bring,
No diagnosis, no prognosis, we know absolutely nothing,
But one thing is guaranteed, we will all be there by your side,
We will not falter – for our incredible, amazing daughter x